It has been 100 days at school this year. William's class had a celebration to commemorate the day. They had snacks, read books, and played games. William could not eat most of the treats that came in because of the celiac disease and also because no one at school knows how to count carbohydrates. When William goes to school everything is clearly marked with the carbohydrates so the ladies at the front desk can tally them and put the number into the pump. It is the best that we can expect for our school since there is no nurse. The ladies at the front desk do a great job of taking care of William but they do not really understand the disease.
When something is out of the ordinary they call me to see what they should do. I can usually talk them through what ever the problem is, but when I can not the school is only a few minutes away from my work. There have been times when I have had to go in to change a site or fix a pump that is not delivering insulin. I also made a care sheet for William that is kind of like an owners manual. It tells the ladies at the front desk to give him candy and how much for different levels when he is low. To give him water and a correction dose when he is high and when to call me if there is a problem. We have been doing this for two years now and it seems to be working great.
When we started school there was a lot more to think about then a normal school student. We had to worry about a 504 plan. That requires you to sit and think about the worst things that could happen to your child everyday. What happens for a lock down at school? What if he goes low and passes out? Fire drills, playground problems and everything else. Fortunately the internet is there and many people before us have had to think about this stuff too. I would not have thought about a lock down at school. It is smart to do so because if you don't he might not have access to needed supplies if caught without is bag. A lock down can last for many hours. If your child gets stuck somewhere with no access to food or candy or glucagon then they could die because of the lock down. William has a bag that he takes with him everywhere he goes at school. It has his meter, candy, snacks, glucagon and a change for his insulin site. Mot people only have to worry if their child get hungry in a lock down. I have to worry if he will die.
William also has snack times that are the same everyday at 10am and 2pm. This give us a chance to test him and also to keep carbohydrates in his system. Keeping him on this schedule really seems to help control his blood sugar throughout the day. He is tested four times while at school. I have gotten him tuned in for most days. That is always an ongoing thing but I am glad that I know that the staff at school is there to call in a monemts notice if something goes wrong and they do.
Thank you Karen and Julie,
Your Loving Dad
When something is out of the ordinary they call me to see what they should do. I can usually talk them through what ever the problem is, but when I can not the school is only a few minutes away from my work. There have been times when I have had to go in to change a site or fix a pump that is not delivering insulin. I also made a care sheet for William that is kind of like an owners manual. It tells the ladies at the front desk to give him candy and how much for different levels when he is low. To give him water and a correction dose when he is high and when to call me if there is a problem. We have been doing this for two years now and it seems to be working great.
When we started school there was a lot more to think about then a normal school student. We had to worry about a 504 plan. That requires you to sit and think about the worst things that could happen to your child everyday. What happens for a lock down at school? What if he goes low and passes out? Fire drills, playground problems and everything else. Fortunately the internet is there and many people before us have had to think about this stuff too. I would not have thought about a lock down at school. It is smart to do so because if you don't he might not have access to needed supplies if caught without is bag. A lock down can last for many hours. If your child gets stuck somewhere with no access to food or candy or glucagon then they could die because of the lock down. William has a bag that he takes with him everywhere he goes at school. It has his meter, candy, snacks, glucagon and a change for his insulin site. Mot people only have to worry if their child get hungry in a lock down. I have to worry if he will die.
William also has snack times that are the same everyday at 10am and 2pm. This give us a chance to test him and also to keep carbohydrates in his system. Keeping him on this schedule really seems to help control his blood sugar throughout the day. He is tested four times while at school. I have gotten him tuned in for most days. That is always an ongoing thing but I am glad that I know that the staff at school is there to call in a monemts notice if something goes wrong and they do.
Thank you Karen and Julie,
Your Loving Dad
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